Thursday, December 05, 2019

One of our main functions is a regular meet-up, where members can talk to others with similar experience in a friendly setting. We exchange information about the treatment and management of CFS/ME and give each other help and support.

We respect the limitations that may come with ME, such as sensitivity to noise or multiple conversations, and try to give people the space and understanding they need. Members keep away when they might have coughs and colds or other infections. You can contribute as little or as much as you wish to the chat. The main benefits are meeting other people with the same condition, not having to explain yourself to others who don't understand, learning more about how other people cope with ME and being able to talk about your own problems if you wish. We try to make our meetings friendly and cheerful, to be positive and discuss problems without being gloomy or moaning.

Meet-ups in Bedford and Luton

Usually, our meet-ups are held in local pubs, with general chat/discussion mainly about M.E.-related matters. Many members are unable to come to meetings for various reasons, so average attendance is only about six.

Meet-ups are held in Bedford and Luton and the surrounding area.   Members may come and go as they please at any time during the period of the meet-up.

Please phone or email for the latest meeting venue and directions how to get there (see Contacts below).

Meet-up dates

This time last year, we were planning to meet in the pub.  With a bit of luck that may happen again later in 2021, but for now we will continue with online meet-ups by Zoom.  We’ve stuck with meet-ups every 6 weeks, alternately on Wednesdays and Thursdays, in case people have other commitments on certain days.  If we are able to return to pub meet-ups, we’ll go back to the old arrangements of Luton on Wednesdays and Bedford on Thursdays.

You don't need to have Zoom installed to take part, or to learn how to use it.  A week before each meeting, I send everyone an email asking people who might be interested to let me know. Then I email participants with a link to click at the time of the meet-up.  Zoom then opens automatically in the participant's browser, and with another click you're admitted to the Zoom session. 

Meet-up dates in 2021

All meet-ups start on Zoom at 2pm



27 January

11 March

21 April

3  June

14 July

26 August

6 October

18 November

Friday, July 21, 2006


To find out more, please telephone the helpline or send an email.

Telephone Helpline: 01525 750078
All calls left on the anwerphone will be returned


Related Organisations

Bedfordshire M.E. Support Group is affiliated to the National organisation:
Action for M.E.
We also have contacts with other support groups in the surrounding areas.
We exchange Newsletters with them and attend each other's functions.
North Herts ME Support Group
Milton Keynes ME Group

Useful Links

The M.E. Association

Association of Young People with M.E. (AYME)

The Tymes Trust (also for young people)

Bedbound/Housebound/Severe ME

General information about M.E.

General information about M.E. Axford's Abode

The CFIDS Association of America, publisher of the CFIDS Chronicle, the most authoritative CFS/ME journal, with a searchable archive


Self-help (online course)

M.E. Tips (practical hints and tips)

Report of the CFS/ME Working to the Chief Medical Officer UK Chief Medical Officer's report

Disability Living Allowance and Attendance Allowance

Citizens Advice Bureau (CAB)

An M.E. website run by one of our members


Telephone: John Chisholm 01525 750078