We respect the limitations that may come with ME, such as sensitivity to noise or multiple conversations, and try to give people the space and understanding they need. Members keep away when they might have coughs and colds or other infections. You can contribute as little or as much as you wish to the chat. The main benefits are meeting other people with the same condition, not having to explain yourself to others who don't understand, learning more about how other people cope with ME and being able to talk about your own problems if you wish. We try to make our meetings friendly and cheerful, to be positive and discuss problems without being gloomy or moaning.
Thursday, December 05, 2019
We respect the limitations that may come with ME, such as sensitivity to noise or multiple conversations, and try to give people the space and understanding they need. Members keep away when they might have coughs and colds or other infections. You can contribute as little or as much as you wish to the chat. The main benefits are meeting other people with the same condition, not having to explain yourself to others who don't understand, learning more about how other people cope with ME and being able to talk about your own problems if you wish. We try to make our meetings friendly and cheerful, to be positive and discuss problems without being gloomy or moaning.
Meet-ups in Bedford and Luton
Meet-ups are held in Bedford and Luton and the surrounding area. Members may come and go as they please at any time during the period of the meet-up.
Please phone or email for the latest meeting venue and directions how to get there (see Contacts below).
Meet-up dates
For now we will continue with online meet-ups by Zoom. We’ve stuck with meet-ups every 6 weeks, alternately on Wednesdays and Thursdays, in case people have other commitments on certain days. If we are able to return to pub or cafe meet-ups, we’ll go back to the old arrangements of Luton on Wednesdays and Bedford on Thursdays.
You don't need to have Zoom installed to take part, or to learn how to use it. A week before each meeting, I send everyone an email with a link to click at the time of the meet-up. Zoom then opens automatically in the participant's browser, and with another click you're admitted to the Zoom session.
Meet-up dates in 2022
All meet-ups start on Zoom at 2pm
Wednesdays |
Thursdays |
26 January |
|
10 March |
|
20 April |
|
2 June |
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13 July |
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25 August |
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5 October |
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17 November |
Friday, July 21, 2006
Contact
Telephone Helpline: 01525 750078
All calls left on the anwerphone will be returned
email: bedsmesg@googlemail.com
Related Organisations
Action for M.E. http://www.actionforme.org.uk/
We also have contacts with other support groups in the surrounding areas.
We exchange Newsletters with them and attend each other's functions.
North Herts ME Support Group http://www.nhmesg.org.uk/
Milton Keynes ME Group www.mkmeg.org.uk
Useful Links
Association of Young People with M.E. (AYME) http://www.ayme.org.uk/
The Tymes Trust (also for young people) http://www.tymestrust.org/
Bedbound/Housebound/Severe ME http://www.25megroup.org/
General information about M.E.
www.chronicfatigue.about.com
General information about M.E. Axford's Abode
The CFIDS Association of America, publisher of the CFIDS Chronicle, the most authoritative CFS/ME journal, with a searchable archive http://www.cfids.org/
Self-help http://www.healthy.net/collinge/cfs.htm
Self-help (online course) http://www.cfidsselfhelp.org/
M.E. Tips (practical hints and tips) http://www.metips.co.uk
Report of the CFS/ME Working to the Chief Medical Officer UK Chief Medical Officer's report
Disability Living Allowance and Attendance Allowance http://www.benefitsnow.co.uk/default.asp
Citizens Advice Bureau (CAB)
An M.E. website run by one of our members http://www.sleepydust.net/